Late last night the nurse came by and informed us that unfortunately things had gotten worse.
In the middle of the night Henry developed an air pocket- a pneumothorax, beside his left lung. This air pocket exerted pressure on the lung, created a small hole in the lung, and collapsed it. They quickly relieved it by putting him on a ventilator and inserting a chest tube to equalize the pressure.WEDNESDAY MORNING
He is now breathing better with the ventilator and they have administered a surfactant to help heal the hole in the lung.
He is now breathing better with the ventilator and they have administered a surfactant to help heal the hole in the lung.
They said he was in a little bit of pain from the tube going into his chest, so they administered morphine to help with the pain through his IV in his tiny hand. He is getting a little bit of nutrition as well through a sugar drop in this IV.
WEDNESDAY AFTERNOON
This afternoon, they informed us that they want to replace the IV in the hand with a UAV/UVC through his umbilical cord. This would allow them a permanent place for an IV as well as a line to draw his blood from so they won't have to heel prick him so often. It is slightly risky due to potential infection and does mean that they expect him to be here at least 72 hours longer. They said with any luck he will be able to get some of Mommy’s milk tomorrow through a TPN and encouraged us to bring any blankets to make him know how much his mommy, daddy, brother, and family love him!
Update:
They were successful at placing the UAV line into his umbilical cord to allow them to draw blood quickly. However, they were unable to get the UVC line in place so they had to stick to peripheral veins and moved his IV from his little hand to his forehead. This is not as ideal because these peripheral veins don't last as long and they'll have to keep looking for new places on his tiny body for IV. It also looks terrible to see this IV in his head.
This afternoon, they informed us that they want to replace the IV in the hand with a UAV/UVC through his umbilical cord. This would allow them a permanent place for an IV as well as a line to draw his blood from so they won't have to heel prick him so often. It is slightly risky due to potential infection and does mean that they expect him to be here at least 72 hours longer. They said with any luck he will be able to get some of Mommy’s milk tomorrow through a TPN and encouraged us to bring any blankets to make him know how much his mommy, daddy, brother, and family love him!
Update:
They were successful at placing the UAV line into his umbilical cord to allow them to draw blood quickly. However, they were unable to get the UVC line in place so they had to stick to peripheral veins and moved his IV from his little hand to his forehead. This is not as ideal because these peripheral veins don't last as long and they'll have to keep looking for new places on his tiny body for IV. It also looks terrible to see this IV in his head.
WEDNESDAY EVENING
Henry is seeing effects from the morphine and now has a catheter to help him pee. The good news is that he has plenty of fluids.
Since Kerem and I visited at about 5:00pm, his oxygen levels in his blood have decreased so they have decided to administer a 2nd dose of surfactant.
They are also putting him on Dopamine through his IV to try to raise his blood pressure a little bit which would hopefully increase the blood flow to his lungs. They are administering a very small dose to prevent complications with his kidneys or heart.
Update: (wed Night)
They have been really testing the ventilator to try and get the right oxygen saturation and it has been tricky to say the least. After giving him the surfactant they were able to keep his oxygen input at around 40%, but at around 10pm he was needing up to 80% from the machine. His blood level has too much C02 in it so they are also concerned about that. They are now talking about possibly switching ventilator machines.
They just decided that the peripheral IVs aren't working as well as they need them to, so they are going to try to insert a PICC line in his arm to provide a more permanent access to his veins. This is where they informed us his NICU stay looks like it'll be a week at minimum.
To be honest we are scared and we are looking at a 7 days stay forward at best. I know this is terribly written, but please try to understand the circumstances and we will do our best to update it when we understand and process everything.
I hope they get the PICC placed.... really nice to have. It's a big fuss to get it in -but- it comes out as easily as a peripheral IV.
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